We met Julia - Information Officer for the LD Parliament - at the Number 4 cafe in Sedgefield.
Julia had volunteered to help me with my Big Challenge campaign for language and literacy for all, and with my campaign against the cuts, helping me share information on the law and the cuts with other Learning Disability MP's and service users who are affected.
The cakes were delicious, and after the cafe we went into the Black Lion for a game of pool, then over to Shildon to visit my friend from college, Lauren.
But not everything was good news.
Julia told us Brian had crossed our names off the list for going to the Mencap event about fighting the cuts on Wednesday 23 March, and we had been really looking forward to meeting Luke Clements there. Luke is a barrister who specialises in social care and my family has downloaded and studied his and barrister Steve Broach's papers on using the law to fight the cuts.
We knew places were limited but Brian had not told us he had decided we were not in the lucky few who could go :(
My talk about the law and the cuts and how personalisation has gone wrong for me in Co Durham did not make it onto the agenda for March Learning Disability Parliament meeting.
Sunday, 31 July 2011
Saturday, 30 July 2011
14 Feb: AAC Keys: Weekend News
When Hannah comes on Mondays and Fridays I tell her what I have been doing since I last saw her. Sometimes I connect my Pathfinder to Mam's old Mac so what I say also gets written into Word.
11 Feb: LD Parliament?
Today was to be my second talk of 2011 at the Learning Disability Parliament. It was to be about using the law to fight the cuts, how personalisation has gone wrong for me in County Durham, everything I have done to help them know me, my needs and wishes, and then open the floor to everyone to share their experiences and talk about how we might campaign for our rights.
MP's from all localities decided before Christmas that this was really important to us all and we talked about making a documentary, having a video booth, putting things on the Internet or making a newsletter.
Our monthly meetings at Durham are the only chance we get to all be together and discuss our issues.
BUT, like in January, some organisations needed to gather information from service users and they took over the meeting.
MP's from all localities decided before Christmas that this was really important to us all and we talked about making a documentary, having a video booth, putting things on the Internet or making a newsletter.
Our monthly meetings at Durham are the only chance we get to all be together and discuss our issues.
BUT, like in January, some organisations needed to gather information from service users and they took over the meeting.
1 Feb: Protect the Frontline!
The Learning Disability Coalition asks people with learning disabilities all over the UK to campaign against cuts in social care budgets by delivering postcards to council leaders, heads of social care and portfolio holders for Adults, Health and Wellbeing 1 February 2011.
I went with my cousin Robert, brother John and friends from Craig House, Barnard Castle - Pauline Lazard, Andrew Henderson, Nicola Jayne Brown, Louise Vollans, Lee Greenaway, Caroline Saunders and John Cooper.
We gave Frontline postcards to Mac Williams JP, Chairman of Durham County Council, Rachael Shimmin, Director of Adults, Wellbeing & Health, and Morris Nicholls, Portfolio Holder at Durham Council Chambers.
Movie on YouTube:
http://www.youtube.com/wat
Pics on Facebook:
I went with my cousin Robert, brother John and friends from Craig House, Barnard Castle - Pauline Lazard, Andrew Henderson, Nicola Jayne Brown, Louise Vollans, Lee Greenaway, Caroline Saunders and John Cooper.
We gave Frontline postcards to Mac Williams JP, Chairman of Durham County Council, Rachael Shimmin, Director of Adults, Wellbeing & Health, and Morris Nicholls, Portfolio Holder at Durham Council Chambers.
http://www.youtube.com/wat
Pics on Facebook:
Learning Disability Coalition:
January: Hannah, My New PA
Hannah is a Literacy teacher and is helping Mam and John with my literacy at home. She is really interested in my communication aid and helping with my language practice, as well as fun things like taking me to her house to photograph her coats and her sons' coats.
Hannah does Dyslexia literacy and Mam and John do synthetic phonics. We are learning from each other.
Hannah does Dyslexia literacy and Mam and John do synthetic phonics. We are learning from each other.
January: Hazel, Lauren & Dale
Dream come true! I've been wanting friends from college to come to my house since I started there 18 months ago and it's happening at last! Lauren started coming and having sleepovers during the Christmas holidays. One Saturday she showed me where Dale lives but he was out. We talked to his family.
I have visited Hazel at home she has been to mine a few times. I took her to see my nephew Paul Squire one Saturday.
It's hard for me to make arrange visits myself and all this came about after my family talked to my friends and their families at the Christmas Fayre in December.
Lauren and Hazel and Hazel's carers all love my iPad, especially the synthetic phonics apps. Hazel's carers are helping her to read and write. If only they would do synthetic phonics with us at college...
I have visited Hazel at home she has been to mine a few times. I took her to see my nephew Paul Squire one Saturday.
It's hard for me to make arrange visits myself and all this came about after my family talked to my friends and their families at the Christmas Fayre in December.
Lauren and Hazel and Hazel's carers all love my iPad, especially the synthetic phonics apps. Hazel's carers are helping her to read and write. If only they would do synthetic phonics with us at college...
Wednesday, 27 July 2011
25-27 Jan: Wishing Well, DADLG, Taekwondo
Tuesday me and Rob went to the Wishing Well club at the Pioneering Care Centre, Newton Aycliffe. We met some friends from college, Innovations and the LD Parliament there.
Wednesday we had a meal at the Court Inn, Durham with friends from Durham Area Disability Leisure Group. Some student volunteers from Durham Uni were there. Rob told them about us making AAC and helping everyone communicate.
Thursday we started doing Taekwondo with Russell Shaw at Spennymoor Leisure Centre, a DADLG activity.
Wednesday we had a meal at the Court Inn, Durham with friends from Durham Area Disability Leisure Group. Some student volunteers from Durham Uni were there. Rob told them about us making AAC and helping everyone communicate.
Thursday we started doing Taekwondo with Russell Shaw at Spennymoor Leisure Centre, a DADLG activity.
Subscribe to:
Posts (Atom)